Warriors Have Scars
I like to consider myself as a “jack of all trades” kind of person. Since I began working at the age of sixteen. I’ve worked in many...
Part One. I Am Mommy
“I know you though we’ve never met At least not yet my dear, But soon we’ll be inseparable As the day approaches near I know when you are...
A Glimpse Into Wes' Life
Meet an ordinary extra cool little guy with an extraordinary story who has learned to live many new and unique normals. People looking...
Fatherhood: Part 3
Kites rise highest against the wind - not with it —Winston Churchill Jack is five now, and he is as the saying goes, all boy, a...
My Sister's Lessons
Hi there! My name is Maddie and Liz is my twin sister. (Elizabeth Adams, her article was published yesterday) We don't look alike, we are...
let little things go
Throughout my 14 years of living with Goldenhar Syndrome I have faced many challenges, but I truly believe that it was because of these...
A New Kind of Normal
It came as a total surprise that there was a Baby A and a Baby B. It was a total and fabulous surprise. There were ultrasounds every...
Different is Beautiful
Hi everyone! So this month is all about acceptance, because its Craniofacial acceptance month! I wanted to share that a time when i...
Part 2: Fatherhood
Part II “Never confuse a single defeat with a final defeat” —F. Scott Fitzgerald Broken, battered, and scared my family started our life...
In My Own Words with Patrick Rhodes
Patrick tells us about his life. His wife, Ashley, and son, Jack, both have Crouzons. #fatherhood #crouzons #emotion #journey #inmyownwords
Fatherhood: Part One
Part I “The world breaks everyone, and afterward, some are strong at the broken places.” —Ernest Hemmingway Being a father means...
Back to school: Advice, tips, and how to have fun with everything you do!
Hello everyone, first thing thank you for taking time to read this article, second thing, thank you Sarah McCune for giving me this...
In My Own Words with Charlie Beswick
From Charlie's Website: "Thanks for stopping by to learn a little bit about us! I’m Charlie, Mum to twins Oliver and Harry although...
In My Own Words with Lacey Buchanan
"On February 18th, 2011, our lives were changed forever when our son Christian Taylor Buchanan entered the world. He was born with a...
From my Heart to Yours: A letter to Parents of Cranio Kids…
So let me start off and say Relax… breathe… everything is going to be okay. Often times I see a lot of parents who are weighed down with...